Afrontamiento y estrés en padres con hijos que presentan trastorno del espectro autista: Una revisión literaria
Coping and stress in parents with children with autism spectrum disorder: A literature reviewContenido principal del artículo
El artículo aborda la relación entre el afrontamiento y el estrés en padres de niños con trastorno del espectro autista (TEA). Se llevó a cabo una revisión sistemática con diseño documental, revisando un total de 64,928 artículos, de los cuales 39 fueron seleccionados para el análisis. Resultando que, el estrés de los padres de niños con TEA está influenciado por la gravedad de los síntomas del trastorno y el afrontamiento que ejecutan. Aunque el estrés persiste en situaciones donde hay síntomas graves, baja calidad de relación familiar, falta de apoyo familiar y conocimiento limitado sobre el autismo, se tiende a emplear diferentes enfoques de afrontamiento según el momento del diagnóstico de autismo. Al principio, es común que recurran al afrontamiento centrado en la emoción, y luego a uno centrado en el problema. En conclusión, el afrontamiento adecuado es clave para reducir el estrés en padres de niños con TEA.
The article addresses the relationship between coping and stress in parents of children with autism spectrum disorder (ASD). A systematic review with documentary design was carried out, reviewing a total of 64,928 articles, of which 39 were selected for analysis. As a result, the stress of parents of children with ASD is influenced by the severity of the symptoms of the disorder and the coping they perform. Although stress persists in situations where there are severe symptoms, low quality of family relationship, lack of family support and limited knowledge about autism, different coping approaches tend to be employed depending on the time of diagnosis of autism. Initially, it is common for them to resort to emotion-focused coping, and then to problem-focused coping. In conclusion, appropriate coping is key to reducing stress in parents of children with ASD.
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Alemdar, D., Yilmaz, G., y Günaydin, N. (2023). The Spiritual and Religious Coping of Mothers with Disabled Children in Turkey: Correlation Between Stress Coping Styles and Self-Efficacy. J Relig Health, 62(2), 888-905. doi:https://doi.org/10.1007/s10943-022-01630-5
Alibekova, R., Kai, C., Crape, B., Kadyrzhanuly, K., Gusmanov, A., An, S., y Rakhimova, M. (2022). Stress, anxiety and depression in parents of children with autism spectrum disorders in Kazakhstan: prevalence and associated factors. Global Mental Health, 9, 472-482. doi:10.1017/gmh.2022.51
Azamin, M., Zakaria, R., ‘Adil, M., y Izzati, N. (2022). Parental Stress and Coping Attitudes in Autism Spectrum Disorder Children: A Survey during Movement Control Order period amid COVID-19 Pandemic. Malaysian Journal of Medicine and Health Sciences, 18(1), 129-136. Obtenido de https://medic.upm.edu.my/upload/dokumen/2022011718052817_MJMHS_0293.pdf
Bozkurt, G., Uysal, G., y Sönmez, D. (2019). Examination of Care Burden and Stress Coping Styles of Parents of Children with Autism Spectrum Disorder. J Pediatr Nurs, 142-147. doi:https://doi.org/10.1016/j.pedn.2019.05.005
Bradley, R., Staples, G., Quetsch, L., Aloia, L., Brown, C., y Kanne, S. (2023). Associations Between Parenting Stress and Quality Time in Families of Youth with Autism Spectrum Disorder. J Autism Dev Disord., 10, 1-12. doi:https://doi.org/10.1007/s10803-022-05852-0
Canseco, N., y Vargas, J. (2020). Comprendiendo los niveles de ansiedad y los estilos de afrontamiento en padres con hijos con TEA. CASUS. Revista de investigación y casos en salud, 5(3), 131–137. doi:https://doi.org/10.35626/casus.3.2020.259
Clark, E., Zhou, Z., y Du, L. (2019). Autism in China: Progress and challenges in addressing the needs of children and families. International Journal of School & Educational Psychology, 7, 135-146. doi:10.1080/21683603.2019.1570885
Di Renzo, M., Guerriero, V., Petrillo, M., y Bianchi, F. (2021). What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents’ Interventions. Journal of Family Issues, 43(9), 2456–2479. doi:https://doi.org/10.1177/0192513X211030735
DRE Huancavelica (2023). Recuperado el 7 de abril de 2023, de El 81% de personas tratadas por autismo en Perú son varones: https://drehuancavelica.gob.pe/educacion-especial/el-81-de-personas-tratadas-por-autismo-en-peru-son-varones/#:~:text=En%20el%20Per%C3%BA%2C%2015%2C625%20personas,ciertos%20temas%20o%20actividades%20rutinarias.
El Peruano (2022). Recuperado el 6 de abril de 2022, de Centros de Salud Mental aplican programa de entrenamiento para padres de personas autistas: https://elperuano.pe/noticia/142872-centros-de-salud-mental-aplican-programa-de-entrenamiento-para-padres-de-personas-autistas
Entienza, E., y Linox, D. (2023). Parents’ Stress and Coping Strategies on Parenting a Child with Autism. World Journal on Education and Humanities Research, 3(2), 78-90. Obtenido de https://www.researchgate.net/publication/370076511_Parents'_Stress_and_Coping_Strategies_on_Parenting_a_Child_with_Autism
Freitas, d., P., Val, d., G., Leôni, M., y Geraldi, V. (2021). Questionário de Estresse para Pais de Crianças com Transtornos do Desenvolvimento: Validação. Avaliação Psicológica, 20(2). doi:http://dx.doi.org/10.15689/ap.2021.2002.18675.02
Gagat, A. (2022). Resilience and Coping with Stress and Marital Satisfaction of the Parents of Children with ASD during the COVID-19 Pandemic. Int J Environ Res Public Health, 19(19). doi:https://doi.org/10.3390/ijerph191912372
Grebe, S., Mire, S., Kim, H., y Keller-Margulis, M. (2022). Comparing Fathers' and Mothers' Perspectives About Their Child's Autism Spectrum Disorder. J Autism Dev Disord, 52(4), 1841-1854. doi:https://doi.org/10.1007/s10803-021-05077-7
Gül, H., y Gür, Ç. (2022). The Relationship Among Problem-Solving, Coping Styles and Stress Levels of Parents of Children with Autism Spectrum Disorder, Attention Deficit Hyperactivity Disorder and Typical Development. European Journal of Educational Research, 11(3), 1231-1243. doi:10.12973/eu-jer.11.3.1231
Hartini, S., Roida, S., y Sutomo, R. (2021). Factors correlating with parenting stress among mothers of children with Autistic Spectrum Disorder (ASD). Enfermería Clínica, 31(3), 505-510. doi:https://doi.org/10.1016/j.enfcli.2020.10.042
Iida, N., Wada, Y., Yamashita, T., Aoyama, M., Hirai, K., y Narumoto, J. (2018). Effectiveness of parent training in improving stress-coping capability, anxiety, and depression in mothers raising children with autism spectrum disorder. Neuropsychiatr Dis Treat., 14, 3355-3362. doi:https://doi.org/10.2147/ndt.s188387
Jamil, S., y El Sayed, M. (2021). Social Support as a Protective Factor for the Well-Being of Parents of Children with Autism in Saudi Arabia. J Pediatr Nurs, 58, 1-7. doi:https://doi.org/10.1016/j.pedn.2020.11.014
Jose, P., Sundaram, S., y Prasad, R. (2021). Buffering Effect of Spousal Support on Stress Levels in Mothers of Children with a Diagnosis of Autism Spectrum Disorder in Kerala, India. https://pubmed.ncbi.nlm.nih.gov/34295109/#:~:text=J%20Neurosci%20Rural, 12(3), 535-542. doi:https://doi.org/10.1055/s-0041-1727559
Kaba, D., Hasanl?, J., Efe, A., Yavuz-Çolak, M., y Ak?n-Sar?, B. (2022). Predictors of burnout and distress in parents of children with autism spectrum disorder during COVID-19 home confinement. Children's Health Care. doi:https://doi.org/10.1080/02739615.2022.2119974
Kishimoto, T., Liu, S., Zhang, L., y Li, S. (2023). How do autistic severity and family functioning influence parental stress in caregivers of children with autism spectrum disorder in China? The important role of parental self-efficacy. Front. Psychol., 14. doi:https://doi.org/10.3389/fpsyg.2023.956637
Kurzrok, J., McBride, E., y Grossman, R. (2021). Autism-specific parenting self-efficacy: An examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden. Autism, 25(5), 1395-1408. doi:10.1177/1362361321990931
Lievore, R., Lanfranchi, S., y Mammarella, I. (2023). Parenting stress in autism: do children’s characteristics still count more than stressors related to the COVID-19 pandemic? Current Psychology. doi:https://doi.org/10.1007/s12144-023-04441-3
Likhitweerawong, N., Boonchooduang, N., y Louthrenoo, O. (2022). Parenting Styles, Parental Stress, and Quality of Life Among Caregivers of Thai Children with Autism. International Journal of Disability, Development and Education , 69(6), 2094-2107 . doi:https://doi.org/10.1080/1034912X.2020.1837354
Lin, Y., Iao, L., Lee, Y., y Wu, C. (2021). Parenting Stress and Child Behavior Problems in Young Children with Autism Spectrum Disorder: Transactional Relations Across Time. Journal of Autism and Developmental Disorders, 51(3), 1-11. doi:10.1007/s10803-020-04720-z
Liu, S., Deng, T., Chen, M., Ji, Y., Dai, Y., Zhang, T., y Zhang, L. (2023). Parenting confidence and social support as predictors of coping strategies in parents of children newly diagnosed with autism spectrum disorder: A cross-sectional study. J Adv Nurs. doi:https://doi.org/10.1111/jan.15708
Maenner, M., Shaw, K., y Baio, J.. (2020). Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016. MMWR Surveill Summ, 69, 1-12. doi:10.15585/mmwr.ss6904a1
Marcone, R., y Borghese, V. (2023). Parental stress and support perception in southern Italy’s households with intellectual disabilities and/or autistic spectrum disorder before and during the COVID-19 pandemic. Research in Developmental Disabilities, 138. doi:https://doi.org/10.1016/j.ridd.2023.104537
Marriott, E., Stacey, J., Hewitt, O., y Verkuijl, N. (2022). Parenting an autistic child: Experiences of parents with significant autistic traits. J Autism Dev Disord., 52(7), 3182-3193. doi:10.1007/s10803-021-05182-7
McIntyre, L., Santiago, R., Sutherland, M., y Garbacz, S. (2023). Parenting stress and autistic children’s emotional problems relate to family-school partnerships and parent mental health. School Psychology, 38(5), 273–286. doi:https://doi.org/10.1037/spq0000531
Ong, C., Magiati, I., Maybery, M., Rodgers, J., Uljarevic, M., y Alvares, G. (2023). Parental perspectives of the everyday experiences of uncertainty among young children on the autism spectrum. Research in Autism Spectrum Disorders, 101. doi:https://doi.org/10.1016/j.rasd.2022.102087
Pang, N., Masiran, R., Tan, K., y Kassim, A. (2020). Psychological mindedness as a mediator in the relationship between dysfunctional coping styles and depressive symptoms in caregivers of children with autism spectrum disorder. Perspect Psychiatr Care, 56(3), 649-656. doi:https://doi.org/10.1111/ppc.12481
Parsons, D., Cordier, R., Lee, H., Falkmer, T., y Vaz, S. (2020). Stress, Coping, and Quality of Life in Families with a Child with ASD Living Regionally. J Child Fam Stud. , 29, 546–558. doi:https://doi.org/10.1007/s10826-019-01585-4
Pisula, E., y Banasiak, A. (2020). Empowerment in Polish fathers of children with autism and Down syndrome: the role of social support and coping with stress - a preliminary report. J Intellect Disabil Res., 64(6), 434-441. doi:https://doi.org/10.1111/jir.12681
Pyszkowska, A., y Wrona, K. (2021). Self-compassion, ego-resiliency, coping with stress and the quality of life of parents of children with autism spectrum disorder. PeerJ., 9. doi:https://doi.org/10.7717/peerj.11198
Pyszkowska, A., Ro?nawski, K., y Farny, Z. (2021). Self-stigma and cognitive fusion in parents of children with autism spectrum disorder. The moderating role of self-compassion. PeerJ.(9). doi:https://doi.org/10.7717%2Fpeerj.12591
Racchumí, C., y Cortez, M. (2020). Afrontamiento al estrés en cuidadores primarios de niños con Autismo. Revista de Investigacion Psicologica(24). Obtenido de http://www.scielo.org.bo/scielo.php?script=sci_arttext&pid=S2223-30322020000200007
Rasoulpoor, S., Salari, N., Shiani, A., Khaledi-Paveh, B., y Mohammadi, M. (2023). Determining the relationship between over-care burden and coping styles, and resilience in mothers of children with autism spectrum disorder. Italian Journal of Pediatrics, 49(53). doi:https://doi.org/10.1186/s13052-023-01465-0
Selvakumar, N., y Panicker, A. (2020). Stress and Coping Styles in Mothers of Children with Autism Spectrum Disorder. Indian J Psychol Med., 42(3), 225–232. doi:https://doi.org/10.4103%2FIJPSYM.IJPSYM_333_19
Shepherd, D., Landon, J., Taylor, S., y Goedeke, S. (2018). Coping and care-related stress in parents of a child with autism spectrum disorder. Anxiety Stress Coping, 31(3), 277-290. doi:https://doi.org/10.1080/10615806.2018.1442614
Shorey, S., Lau, L., Tan, J., Ng, E., y Aishworiya, R. (2021). Families with children with neurodevelopmental disorders during COVID-19: A scoping review. ournal of Pediatric Psychology, 46(6). doi:https://doi.org/10.1093/jpepsy/jsab053
Side, S., y Kumar, S. (2022). Stress among Parents of Children with Autism Spectrum Disorder and Parents of Typically Developing Children, Ethiopia Ali. Eastern Africa Social Science Research Review, 38(2), 25-44. doi:https://doi.org/10.1353/eas.2022.0006
Stagg, S., Kodakkadan, F., y Kareepadath, S. (2023). Stress and resilience in British Indian parents with an autistic child: a comparative study with white British and Indian parents. Advances in Autism, 9(3), 279-292. doi:https://doi.org/10.1108/AIA-09-2022-0048
Tokatly, I., Leitner, Y., y Karnieli-Miller, O. (2021). Core experiences of parents of children with autism during the COVID-19 pandemic lockdown. Autism, 25(4), 1047-1059. doi:10.1177/1362361320984317
Wang, F., Lu, L., y Wang, S. (2018). The prevalence of autism spectrum disorders in China: a comprehensive meta-analysis. Int J Biol Sci., 14, 717-725. doi:10.7150/ijbs.24063
Wang, H., Wang, Q., Hu, X., y Rachel, Z. (2022). Mindfulness and Stress Among Parents of Children with Autism Spectrum Disorder in China. J Autism Dev Disord., 52(5), 2035-2045. doi:https://doi.org/10.1007/s10803-021-05011-x
Wang, L., Li, D., Pan, S., Zhai, J., Xia, W., Sun, C., y Zou, M. (2021). The relationship between 2019-nCoV and psychological distress among parents of children with autism spectrum disorder. Global Health, 17(1). doi:https://doi.org/10.1186/s12992-021-00674-8
Weinberg, M., Gueta, N., Weinberg, J., Abu, M., Akawi, A., Sharkia, R., y Mahajnah, M. (2021). The relationship between parental stress and mastery, forgiveness, and social support among parents of children with autism. Research in Autism Spectrum Disorders, 81. doi:https://doi.org/10.1016/j.rasd.2020.101712